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Making a difference in the lives of those affected by NKH
SAVE THE DATE FOR THE 12th annual John Thomas NKH Golf Classic on June 7, 2024.
CLICK HERE TO VIEW IMAGES FROM THE 2023 GOLF TOURNAMENT!
CLICK HERE TO VIEW IMAGES FROM THE 2022 GOLF TOURNAMENT!
The NKH Community is on the verge of some very big accomplishments in NKH research. We are doing a fund raising blitz between March 4 and April 4, 2024. All proceeds donated to the John Thomas NKH Foundation between that time will be matched by a very kind and generous NKH family. So if we raise $10,000, we have actually raised $20,000!
Please help us to meet our mission of helping families affected by NKH and funding research. 100% of your donation goes towards helping NKH families with medical expenses and theraputic and assistive equipment. Any amount is helpful!
As of July, 2020, the John Thomas NKH Foundation has entered into a 5 year agreement with the University of Notre Dame in order to support gene therapy research of the NKH disease.
NKH Awareness day is May 2, 2024. Families across the country and the world will celebrate our NKH warriors. Please consider a small donation for NKH Awareness Day to help those who battle this disease every day. Thank you!
Check out a list of other NKH foundations throughout the country and other great resources.
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