NEWS AND ANNOUNCEMENTS

Register for the John Thomas NKH Golf Classic, April 30 2021

Virtual Golf Option Added to John Thomas Golf Classic This Year

THIS EVENT IS SOLD OUT!! ONLY VIRTUAL TOURNAMENT REGISTRATION IS AVAILABLE.

FOR YOUR CONVENIENCE, ALL REGISTRATIONS WILL BE DONE ONLINE. NO MAIL IN CHECKS OR REGISTRATIONS WILL BE ACCEPTED.

ALL REGISTRATIONS MUST BE RECEIVED AND PAID FOR BY APRIL 15, 2021

Virtual Golf Option Added to John Thomas Golf Classic This Year

If you would like to participate in the 2021 John Thomas NKH Golf Classic but cannot do so due to Covid issues or otherwise, you can sign up to play in the virtual tournament. By participating virtually, you will be playing your round on a non-holiday, weekday of your choosing between April 15 and June 15 (if you want to submit your score) or any non-holiday, weekday in 2021. Virtual round cannot be used for league play and no rain checks will be allowed. Cost is $500 per team and includes:

18 holes of golf
range time
lunch

Become Part of the John Thomas Family of Supporters

Virtual Golf Option Added to John Thomas Golf Classic This Year

John Thomas NKH Foundation to Help Fund Gene Therapy Research at Notre Dame

Please help us to meet our mission of helping families affected by NKH and funding research. 100% of your donation goes towards helping NKH families with medical expenses and theraputic and assistive equipment. Any amount is helpful!

BECOME A GOLF TOURNAMENT SPONSOR!!

Donate Now

John Thomas NKH Foundation to Help Fund Gene Therapy Research at Notre Dame

As of July, 2020, the John Thomas NKH Foundation has entered into a 5 year agreement with the University of Notre Dame in order to support gene therapy research of the NKH disease.

Find out more

NKH Awareness Day, May 2, 2021

John Thomas NKH Foundation to Help Fund Gene Therapy Research at Notre Dame

Find Other NKH Foundations and Resources

NKH Awareness day is coming up May 2, 2012. More information will be available in the coming weeks about how to get your NKH Awareness shirt to wear on that day!

Find Other NKH Foundations and Resources

John Thomas NKH Foundation to Help Fund Gene Therapy Research at Notre Dame

Find Other NKH Foundations and Resources

Check out a list of other NKH foundations throughout the country and other great resources.

Resources and More

About Us

WHO WE ARE

OUR PARTNERS

WHO WE ARE

The John Thomas NKH Foundation is a 501(c)(3) charitable, public foundation. We were founded in 2012 and are based just west of St. Louis. Our goal is to help families affected by the NKH disease as well as help fund research that hopefully will lead to a cure for this horrible disease.

MISSION

OUR PARTNERS

WHO WE ARE

Our mission is to help families affected by the NKH disease as well as fund research in hopes of finding a cure.

OUR PARTNERS

The John Thomas NKH Foundation is proud to partner with Cardinal Glennon Children's Foundation. Each year we donate thousands to help meet the needs of children and families affected by NKH.

As of July, 2020, the John Thomas NKH Foundation has entered into a 5 year agreement with the University of Notre Dame in order to support gene therapy research of the NKH disease.