Everyone at the John Thomas NKH Foundation would like to extend a very heart-felt thank you to all who attended and supported our event this year. The event was huge success! The weather was perfect and so were all of our golfers!
Please remember to become a John Thomas NKH Foundation member to stay on top of the latest news and updates as well as special discounts on the John Thomas Shop!
Visit the web site for the Boler-Parseghian research center to learn more about NKH and what is being done to battle the disease. Notre Dame is one of the leading institutions conducting research at this time. CLICK HERE TO READ MORE ABOUT IT.
Please help us to meet our mission of helping families affected by NKH and funding research. 100% of your donation goes towards helping NKH families with medical expenses and theraputic and assistive equipment. Any amount is helpful!
As of July, 2020, the John Thomas NKH Foundation has entered into a 5 year agreement with the University of Notre Dame in order to support gene therapy research of the NKH disease.
NKH Awareness day was May 2, 2021. Families across the country and the world celebrated to the theme of "Hope and Gratitude". Hope for an eventual cure and gratitude to those who are doing so much for NKH families and research about NKH.
Check out a list of other NKH foundations throughout the country and other great resources.