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Making a difference in the lives of those affected by NKH
FOR YOUR CONVENIENCE, ALL REGISTRATIONS WILL BE DONE ONLINE. NO MAIL IN CHECKS OR REGISTRATIONS WILL BE ACCEPTED.
ALL REGISTRATIONS MUST BE RECEIVED AND PAID FOR BY APRIL 15, 2021
If you would like to participate in the 2021 John Thomas NKH Golf Classic but cannot do so due to Covid issues or otherwise, you can sign up to play in the virtual tournament. By participating virtually, you will be playing your round on a non-holiday, weekday of your choosing between April 15 and June 15 (if you want to submit your score) or any non-holiday, weekday in 2021. Virtual round cannot be used for league play and no rain checks will be allowed. Cost is $500 per team and includes:
Please help us to meet our mission of helping families affected by NKH and funding research. 100% of your donation goes towards helping NKH families with medical expenses and theraputic and assistive equipment. Any amount is helpful!
As of July, 2020, the John Thomas NKH Foundation has entered into a 5 year agreement with the University of Notre Dame in order to support gene therapy research of the NKH disease.
NKH Awareness day is coming up May 2, 2012. More information will be available in the coming weeks about how to get your NKH Awareness shirt to wear on that day!
Check out a list of other NKH foundations throughout the country and other great resources.
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