The 10th annual John Thomas NKH Golf Classic was a great success! Thanks to all who attended, volunteered, and sponsored our event.
Visit the web site for the Boler-Parseghian research center to learn more about NKH and what is being done to battle the disease. Notre Dame is one of the leading institutions conducting research at this time. CLICK HERE TO READ MORE
Please help us to meet our mission of helping families affected by NKH and funding research. 100% of your donation goes towards helping NKH families with medical expenses and theraputic and assistive equipment. Any amount is helpful!
As of July, 2020, the John Thomas NKH Foundation has entered into a 5 year agreement with the University of Notre Dame in order to support gene therapy research of the NKH disease.
NKH Awareness day is May 2, 2022. Families across the country and the world will celebrate our NKH warriors. Please consider a small donation for NKH Awareness Day to help those who battle this disease every day. Thank you!
Check out a list of other NKH foundations throughout the country and other great resources.